Best Endometriosis Blog 2016

Tuesday, September 10, 2013

Visanne



Visanne, to take or not to take that is the question. 

In 2012 I was seeing a Endo Specialist at a pain clinic and she suggested I take Visanne to essentially help with the pain and stop my periods. During this time I was on Marvelon which works very well for me but since I was pushing for a surgery I felt that I needed to do what she asked just so that she felt that I was listening. I was told Visanne was new on the market in Canada and that it was similar to Lupron but in pill form and with less side effects. Visanne is a progesterone only pill and I should have known that my body can not just have progesterone.  I found Visanne did 1 thing for me and that was stop my periods. 

The side effects that I had were severe sharp pelvic knife like stabbing pains all over the pelvic region. My skin started to break out like crazy all over my face, neck, back, and chest. I started to get really depressed, I had insomnia and by the end of the third pack (3 months) I was completely off my rocker and suicidal. 

I am not saying that you should not try it because I am not that daft. I know that everyone responds to medication and treatments differently and I could never say don't take it, I can only express to you what I went through. 

Would I take it again? HELL NO!

I think I will stick with the Marvelon for now even though after 8 yrs I am starting to spot every month which I have never done before. I can't picture myself not on Marvelon. I have tried to come off it but what happened to me during my Visanne trial is what happens to me when I come off Marvelon. 

I always thought that I had an Estrogen dominance but for some reason I am thinking that it is actually Progesterone.

If you are looking for more information on Visanne here is the Bayer website. http://visanne.com/en/auth/prescribing-essentials/quick-visanne-facts/

What experiences have you had on Visanne?   

83 comments:

  1. I thought Visanne would be the solution to my 20 year ride with endometriosis. Sadly I was mistaken. I took Visanne for 48 days and experimented 32 days of heavy bleeding. I am now more than mildly anemic, depressed and worried about what withdrawal will mean for my body.

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  2. I knew it would do nothing for me and that I was just being shoved this medication because for some doctors they still believe medicines like this work. I have tried so many and although this wasn't the worst one it surely wasn't one of the best ones either

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  3. I took Visanne and had a lot of intestinal problems because of the medication. Probably is because it has lactose, but it was an awful experience. I stopped and now I'm waiting for a new medicine that really can help women with endo. I have severe endo and it has been difficult for me to try new medicines.

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  4. It's very tiring when you become a guinea pig doesn't it? We all just wished one thing would work so we don't have to go through all this nonsense.

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  5. I was on Visanne for a year. It was honestly the worst year of my life. After seven months I went back to the gynae for a check up and to tell her I want to go off of Visanne as I still had the same pains, my skin was in a terrible condition and I was acting like an emotional train wreck. She convinced me to stay on it and gave me Roaccutane for my terrible skin problems. My skin didnt get any better, the depression got worse and I lost so much weight. The meds reacted badly to each other and I ended up in hospital. A month ago i went off all the meds. I look healthier, actually feel happy and my skin is getting better on its own. Visanne did not help with my pains at all and I did not benefit from it

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    1. Hi Charmaine, how long after younstopped taking Visanne did you get a period again? I am on it now, but have to stop in 2 weeks to wait for a period to start IVF stimulations.

      Thanks and take care
      Desy

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    2. Hi Cook with Desy, me too just stopped taking Visanne after 3mths of Visanne for period to start IVF stimulations. On day 5 today I just had spotting. Hope my period coming soon.. How your IVF going?

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  6. Thank you Charmaine for sharing your experience.

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  7. hello,
    I have endo as well was diagnosed in 2000. I was on marvelon for 10 years until it stopped working for me. I started getting breakthroughs which resulted in me getting a fibroid. I was put on lupron. Loved it! Hated the needles but felt free. Unfortunately, you cannot take it long term. I was put on a birth control can't remember the name that made me crazy. Lost the love of my life and almost lost my job and many friends and my family were also starting to lose patience with me until the drs figured out I was not going crazy but the drugs were impacting my mental and physical health. Had two blood clots. My fibroid got bigger over 6 cm and I started bleeding non stop. Pains and lots of blood. Hospital was waiting for me to faint or blood and iron levels to reach the point that I would need blood transfusions. My family Dr was not happy with the hospitals. I finally researched and found an amazing Dr. To stop the bleeding they said I needed to go on the birth control again. I already went through almost all of them. I asked for her yo put me on something that won't make me crazy and rude. Was told visanne. Other than breaking out on my face, I feel great! I am my happy go lucky self. I just had surgery in January 2015, was told I have to stay on it for good unless I want to have surgery again. It's been 7 months now. I also see a naturopath and together I hope to figure out ways to stop the breakouts and ensure that my hormones are balanced. Endo is high level estrogen. You have to keep in mind that visanne is progesterone and it can if high doses your body turn it into testosterone and then to estrogen. I will be doing tests to see my estrogen levels bad and good ones and then a full hormonal test -not by blood. I hope my story is helpful. Good luck everyone. One thing my Dr said no dairy and no sugar.

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  9. I have hormone imbalance and my doctor advised me to take Visanne. He gave me 3 boxes for 3 moths. I have taken 44 pills, it's been 1,5 moths. Thank God I found your blog! I feel what you felt and even worse. I can't sleep at night, I feel so much pain in my chest and breasts, my heart beats faster, pelvic pain and the worst is I feel so depressed, so sad without any reason like I want to suicide. I'm going to stop taking Visanne.Thank you for sharing! :)

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    1. Melissa, I'm comforted to read your comment as I am on my third week of Visanne and my heart rate has increased significantly and I have severe chest pains and I am stopping the Visanne today. It is also causing me to double over in cramps where I have to lay on floor at work, it's like someone is inside my lower and upper abdomen ting cigarette buts out on the inside. It's horrible. It hurts so bad I have to take a leave from work. I know there are things that will feel better than this. I mean I felt better on birth control than all this !

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  10. hi ladies, can anyone tell me what their experiences were after using Visanne successfully for 6 months or longer then stopping??? tnx

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  11. How long after stopping it did your cycle return? My body is going through pre-O temps and my opk's are all over the place. I am either cd31 or 18 based on last full AF or spotting which could have been AF. Tia!

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  12. Charla I went straight back on Marvelon so my period never came. Some take months to come back some right away. Everyone is different :S

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  13. Thanks for the reply. I will just have to see what happens I guess!

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  14. This is so helpful. My 13yo daughter has been on Visanne for two months. She was having retrograde menstruation which was causing her some pain and although there was no endo visible at the end of Feb when she had a laparoscopy and appendectomy, the risk is that the internal bleeding would lead to endo, hence Visanne. Two months on, she has not had a period this time but has now been having severe abdominal pains for two weeks. She was very thoroughly scanned and the gynaecologist says she can see no reason for the pain and wants her to see a gastroenterologist. I suggested that it might be the Visanne and she said she wanted us to persist with it. Those who had abdominal pains and came off Visanne.... how long till the pain went away? Thanks.

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  15. Bethan you really need to get your daughter to an Endo specialist. It is extremely possible that the surgeon did not see endo because he didn't understand different looks of endo. The younger you are Endo looks different, it could look clear and with an untrained eye may not have seen the endo so your really need to bring your daughter to an endo specialist. The pain will not go away unless she is treated the right way.

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  16. I have been on visanne for almost 5 months now to treat my endo symptoms which included sever adhesions. I am having a full hysterectomy in 5 weeks and this was supposed to help me meanwhile. Today I got the ok to stop it and I just want to know when to expect the side effects to go away and for me to feel normal again. The side effects for me were sever mood swings, depression, weight gain, low sex drive and a few breakouts around my chin.

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  17. Laura I was the same coming off and going back on marvelon for me helped. I hope you get the relief you need

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  18. Hello All!
    I took Visanne for a year and a half and I stopped because I was having heart pulpations. I was off of it for a year and the endo came back like crazy.
    I'm currently back on Visanne yes it does have its side effects however I just decided to get through the first 3 months because I knew that most of the side effects would go away. Now I have learned how important it is to take this medication at the same time every day. I work a messed up shift so on the weekends I wasn't taking it at the same time therefore I was getting heart pulpations.

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  19. I want to make it clear just so that anyone reading this is aware. No hormone medication like visanne will stop Endo from growing. The purpose is really to stop your periods therefore stopping the pain. When you are on these meds Endo will still continue to grow if it has not been properly removed from the root. There are a limited amount of specialists that know all the different faces of the disease such as colour, shape, where it can be missed and many surgeons still tell their patients that it will stop the disease from growing if they take meds such as visanne. This is false. You need to have the disease excised (cut out)

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  20. Thank you so much for sharing your experience. I had a 2 inch endo removed from my right ovary in July, and felt happy, healthy and pain free ever since. In August doc insisted I started taking Visanne "cause it would stop periods and therefore I would feel no more pain". Worst mistake ever! I've been spotting weeking, and after 3 months having the same side effects you described above, I decided to quit Visanne. I hope I'll start feeling better soon! Visanne is not for me!

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  21. Angela I think it's different for everyone. I had a lap earlier this year to remove endo and a cyst, it came back within 5 months. Went onto Visanne and within 6 weeks the endo had shrunk to almost nothing. Staying on it for another 3 months then gynae says he thinks it would have gone altogether. I feel ok, headaches eased after the first few weeks but the tiredness is something I can't get used to. I have zero energy!!

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  22. Sorry and forgot to say it is in my right ovary, my uterus was removed about 6 years ago because of fibroids so I haven't had periods since 2009. The pain from endo was terrible and it has completely gone since being on Visanne.

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  23. Unknown- Everyone experiences something different on meds. What works for some might not work for another. Visanne helps many people I know, I would say a lot more than Lupron but it is still a bandage. I also know many people that have severe reactions to Progesterone only meds like Visanne.

    SA-I am glad you have no pain that is great.

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  24. I've only been on it for 4 weeks and it has made me very depressed paranoid and anxious. My heart beat is faster and I feel weak. Also my urine is darker and I feel like my pain had not gotten better. I was told today to stop taking it. I'm worried now cuz I won't be having surgery until next year because of a waiting list. I just feel helpless how are you supposed to have another life if your always in pain?

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  25. I feel like there needs to be more work done to try and fix this. Endo is effecting more and more women today then ever and it's heart breaking.

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  26. I have gained a lot of weight on visanne and been having a hard time trying to lose weight now. Anyone else struggle with this side effect?

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    1. Me! I went off the pill a week ago already down 1kg. This pill made me miserable

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    2. Same here... Weight gain and mood swings... U almost feel like may be alot of periods will stop the weight gain but nooo...

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    3. Yes. I've gained a lot of weight and am having a very hard time losing it.
      Despite a mostly fresh vegetable diet, frequent small meals, increase of water and limiting the bad stuff, nothing has been successful. I've lost 50 lbs on my own previously so I know how to do it. The only difference is that with my back now, I struggle with exercise. It's been awful.

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  27. Thank you so much for sharing

    I've had surgery to remove endo and cyst in July as the pain was so bad I couldn't move. And in August, my doctor insist for me to be on Visanne to stop my period and prevent endo from reoccurring.

    In this 5 months, I've had horrible mood swings, uncontrolled depression, weight gain, my hair growth has reduced drastically (everywhere) and breakouts. Sometimes I think I'm going crazy. So much so that I've quit my job and stayed at home and away from many people cause I can't seem to control my anger and sadness.

    Coming across experiences like this helps me get through the days. I'm going to see different doctors to get second opinions and hopefully to stop this medication and keep the endo away.

    Thanks everyone.

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  28. Hey guys - I want to offer my own personal experience for a more positive outlook on Visanne. I was diagnosed with endometriosis just last year after I was constantly urinating blood with substantially sized blood clots, and also passing blood in my stool. When a colonoscopy and cystoscopy showed nothing - finally multiple ultrasounds indicated what I had.

    Let me stress that I did NOT want to take Visanne whatsoever. I felt my doctor pushed the pills on me, and I stubbornly did not take them. When I had my three month checkup with my specialist, I asked some in-depths questions as to why she insisted I try the pills. Finally, I decided to give it a shot.

    I started in August. At first, I spotted for 3 months. It was annoying - but I persisted. The spotting finally ended, and every now and then I'll still have a little bit. My pain was crippling in the beginning as well. I was getting horrible spasms that would be debilitating. I debated stopping but again, I let it run its course. It's been 4 months now and I've experienced hardly any side effects other than spotting, and occasional throbbing in my right ovary. I've gained about 10 pounds in water weight and bloating which is VERY annoying but other than that, I've experienced no mood swings or anything like that.

    I didn't have a choice BUT to take Visanne - my ovaries have too large of endometriomas on them and since I want children eventually, my doctor is very hesitant to preform surgery.

    My advice is to just be patient. Give it more than a few weeks. Medication typically takes 3 months or more for your body to become adjusted. Sometimes, it can be worth it in the end.

    So far, my pros outweigh any cons, and I'm quite pleased to not experience a period anymore and to be *relatively* pain free, for now.

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  29. Thanks for all your feedback everyone. I am sure this could help someone if they come across looking for answers. :)

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  30. Hi everyone,
    I just want to find out from those who had taken visanne for a year and stopped. I need to know how was the process, did you experience any pains and how long did it take to get your periods to come back.

    Thank you for all the replies

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  31. Hi. I've been on Visanne for three months now and I'm getting gum disease... My dentist told me it might be the pill cuz I'm very carefully with my mouth hygiene.
    Also, I haven't gotten my regular flow for the last month, is it normal?

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  32. Hi. I've been on Visanne for three months now and I'm getting gum disease... My dentist told me it might be the pill cuz I'm very carefully with my mouth hygiene.
    Also, I haven't gotten my regular flow for the last month, is it normal?

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  33. Hi Everyone , I have put on Visanne for 6 months after lap for removal of ovarian tumor and endo. 3 months have passed no pain , no mood swings feel great accept for spotting continuously . But overall a positive experience on Visanne

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  34. Hi Everyone, this blog is really helpful as it is full of information. I am on my first night of taking Visanne. I hope everything will work fine with me. Good Luck to us all.

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  35. I am really happy that everyone has come and written what they have been through. This particular post is one of my most popular and most active :)

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  36. Hi Ladies,
    Thank you all for your open comments. I have been on Visanne for 10 months now and overall this pill has made my life worth living.
    I too experienced pain, infinite bleeding, increased blood pressure, sleeplessness, migraines and depression for the first 3 months of being on the pill but my gynecologist swore it wasn't from the pill..ya right! Luckily I waited it out. Now I experience no pain because I no longer get my period, ever!
    My concern is the effect that this must have on my body. I cant find information on whether or not there are longterm studies on stopping a womans menstrual cycle.
    All in all I get less acne, near to no pain (occasional minor cramps around that time of month), my moods are constant (although sometimes I can sense that it must be that time, nothing drastic though)

    Are most of you experiencing no bleeding at all? Do you have any concerns about that?

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  37. Also I did stop vissane once in the last 10 months since I forgot to bring a new packet with me to work. After missing nearly a week of the pill I decided to wait until I got my period to start the next pack, just like you would on birth control. Well, 2 weeks passed and still no period just constant head aches, increased blood pressure...withdrawal. At this point I decided to go back on the pill and see what happens. Nearly 2 weeks after restarting the pill (1month after stopping) I experienced moderate-severe cramping and minor bleeding for 2 days. Then that was it. Back to no periods and no pain.
    Needless to say my body says all or nothing!

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  38. I sure am glad to have come across this blog post! I've been taking Visanne for my endo after a lap 6mos ago and so far so good. I dont have any pain/cramping/mood changes but I do have constant spotting almost every day. My 6month period has ended and I stopped taking it 3days ago. I'm scheduled for UTZ this Saturday but I'm concerned because I think my menses came back too early (3days after stopping Visanne). Is this normal? Hopefully, no cysts this time, I'll know on Saturday!

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  39. I sure am glad to have come across this blog post! I've been taking Visanne for my endo after a lap 6mos ago and so far so good. I dont have any pain/cramping/mood changes but I do have constant spotting almost every day. My 6month period has ended and I stopped taking it 3days ago. I'm scheduled for UTZ this Saturday but I'm concerned because I think my menses came back too early (3days after stopping Visanne). Is this normal? Hopefully, no cysts this time, I'll know on Saturday!

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  40. Hi, Just wanted to know how did it go with UTZ and how do feel since stopping Visanne. I have my last week on Visanne and will be seeing my doctor next week.I also had lap done 6 months ago

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  41. Hi.
    I have seviour Endometriosis which affects the bowels, and had been on Visanne as surgery may lead to colostomy and other complications. Previously was on Lupride injection, Oral Contaceptives with difficult side effects. With Visanne I am having lot of bloating, hair loss and weight gain. We decided to try something else whilst getting on the surgery list. I missed my Visanne day before yésterday and took a full tablet yesterday and a half tablet today. Already I am having the endometriosis symptoms since mid day, which includes acute loose motion, bowel churning like feeling and abdominal pain. Although still no periods, having changes indicating it will start. I am shocked that the symptoms were so immediate.

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  42. has anyone been on visanne for more that two years? i've been on for 2 now and have had no pain, no period. some weight gain and in the beginning mild depression. i did however this week start getting intense pain and basically my first period in two years - not sure why as i have been taking the pills every day. anyone else experience this?

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  45. Thank you for sharing your experience with Visanne! Information is very helpful when we are unsure of what to expect and what to do. I was diagnosed as having endometriosis in the left ovary and adenomyoma in the uterus last April, 2016. Options were oral contraceptives, injectables or hysterectomy. Since am turning 48 this year, my obgyne gave me the option of waiting for my menopause to set in and taking Visanne while waiting. First month on the pill was great! No recognizable side effects just tiredness and some mood swings. Second month, I had a week of spotting then I had moderate to heavy bleeding ever since. I have been bleeding for a month now and my obgyne says just stick it out with Visanne. Things will be better after 3 months is what she said. She gave me Hemarate to make sure my iron level is still ok as well as Caltrate for Calcium. Should I stick it out? Pain is more tolerable now and I take Celecoxib when I couldn't handle the pain. Can I die due to blood loss?

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  46. Usually giving any med 3 months is the norm. I would stick it out until then if you can. It helped my pain but gave me new pains and unbearable symptoms. It really is hard to say what to do because everyone is different. If it is tolerable then stick with it. The decision is always yours to make. If you start getting symptoms that you just can't handle talk to your doctor about something different.

    When they diagnosed you with Endo did they excise (cut out) the disease?

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    1. Thank you for your reply Angela! As for your question, my ob wanted me to undergo hysterectomy to remove the adenomyoma in the uterus and the endo in the left ovary but I opted to hope that menopause would come soon since am 48 already. The ob gave me Visanne which she said is safe to take for a maximum of 3 years. Am praying for menopause to come very soon so I could stop taking any meds. Am praying for all of you too. Endo is both painful and depressing to have. I miss my lively and happy self. Hugs to everyone out there who are suffering too.

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  47. Usually giving any med 3 months is the norm. I would stick it out until then if you can. It helped my pain but gave me new pains and unbearable symptoms. It really is hard to say what to do because everyone is different. If it is tolerable then stick with it. The decision is always yours to make. If you start getting symptoms that you just can't handle talk to your doctor about something different.

    When they diagnosed you with Endo did they excise (cut out) the disease?

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  48. Hello
    I was diagnosed with Endo last March 2015,had three cyst removed from left and right ovaries. My OB prescribe me to try depo shot to avoid having period. After a month I had really bad spotting and fatigue, I went to my OB again and she just said much better if I take contraceptive pills to balance my cycle. My period starting to be painful again and felt really afraid to my endo symptoms. I decided to try second opinion, I went to a new OB and found out after a test that I have new Cyst growing again in my left ovary.
    She told me to take Vissanne for 4months,to dissolve my cyst. Im on my 3rdmonths now. I dont have pain just a bit of cramp,mild spotting and hairloss.Headaches once awhile and I missed my period for two months. So far no severe pain and Im happy about it.I will have my next check up after 4rthmonth if no more cyst I will try my best to get pregnant.Godbless us all.

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  49. Hello
    I was diagnosed with Endo last March 2015,had three cyst removed from left and right ovaries. My OB prescribe me to try depo shot to avoid having period. After a month I had really bad spotting and fatigue, I went to my OB again and she just said much better if I take contraceptive pills to balance my cycle. My period starting to be painful again and felt really afraid to my endo symptoms. I decided to try second opinion, I went to a new OB and found out after a test that I have new Cyst growing again in my left ovary.
    She told me to take Vissanne for 4months,to dissolve my cyst. Im on my 3rdmonths now. I dont have pain just a bit of cramp,mild spotting and hairloss.Headaches once awhile and I missed my period for two months. So far no severe pain and Im happy about it.I will have my next check up after 4rthmonth if no more cyst I will try my best to get pregnant.Godbless us all.

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  50. I was diagnosed with endo late last year and has been on visanne for close to 6 months. The chocolate cyst has shrunk half the size to 1cm. Doctor has advised to stop the medication and reviewed half a year later.

    While taking the medication, I have faced severe weight gain of almost 10kg, hair thinning , nauseous and giddiness.

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  51. Help please. I've used visane for a month and week now. For the past few days headacEs is terrible and I have know idea where it's coming from but have suicidal thoughts. Feel depressed and anxious. I get upset for no reason. Feels like I can't control my thoughts words etc.

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  52. Help please. I've used visane for a month and week now. For the past few days headacEs is terrible and I have know idea where it's coming from but have suicidal thoughts. Feel depressed and anxious. I get upset for no reason. Feels like I can't control my thoughts words etc.

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  53. Sarie I went through the exact same side effects don't go through another day like this and see your doctor for other options.you could probably have the same problem I had with the abundance of progesterone.

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  54. After you stopped using it how long did it take to get back to normal? I did not take it last night and will get to the doctor today. Thank you for the reply.

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  55. After you stopped using it how long did it take to get back to normal? I did not take it last night and will get to the doctor today. Thank you for the reply.

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  56. Hi Sarie,

    I was on Visanne for 6 months. After I've stopped, it was about 1 month or so before my first period came. However, I am now having terrible mood swings and depression (compared to pre-Visanne days) and I am not sure if it is a side-effect of stopping the medication or just work stress.

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  57. Hi, I was on visanne for 3 months. I gained weight lime crazy, my skin looked horrible, I had insomnia and I was depressed. Its the worst medication ever! I was on it to stop my periods coz I kept on getting cysts. I went off it about a week ago, I am a new person! Never will I use it again its horrible!

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  58. Hi Everyone,
    I took Visanne for 4 months but my monthly period did not stop and the adenomyosis and endometriosis worsened so I had to undergo total hysterectomy together with the ovaries! Am still recovering from the surgery and adjusting to instant menopause but no more abdominal pains and bleeding! I hope you all find the right option to say goodbye to your pain.

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  59. Hi Everyone,
    I took Visanne for 4 months but my monthly period did not stop and the adenomyosis and endometriosis worsened so I had to undergo total hysterectomy together with the ovaries! Am still recovering from the surgery and adjusting to instant menopause but no more abdominal pains and bleeding! I hope you all find the right option to say goodbye to your pain.

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  60. Hi All

    This block is really helpful and thanks

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  61. Hi everyone,

    I was diagnosed with endometriosis in 2011 and since then have tried multiple ways to control it. I had a lap in 2013 to remove some of the endo. I then had Mirena IUD inserted in 2013 as well to help stop my periods as the lap procedure was not enough. I started taking visanne in 2014 due to constant pain and spotting not controlled by the iud. I stopped taking visanne about 2.5 months ago as i want to wean myself off slowly to prepare my body for pregnancy. As a result, i have had spotting most days with clots, at times moderate to severe cramping, mood swings, breast tenderness and nausea. Has anyone stoppee before and experienced similar symptoms? And if so how long did the symptoms last? Im scared that i am doing my body more harm than good at this time.

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  62. hi all, ive been on visanne for 5 months going into my 6th and final month. i only had severe pelvic pain on the first day of taking it and restarted based on my dr's advice two days later. since then ive had no major side effects except for feeling easily tired and faster than usual heartbeat. i came here to find out how long after the treatment did any of you started having periods again and how was it? I am a bit worried about not knowing what to expect after finishing the treatment that is also closer to my exam time as well. while on this treatment i also realised that i had to avoid milk or dairy as it messes up my digestive system and tried to go on rice milk instead. yes much more research needs to be done on this disease that it alarmingly affecting many women.

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  64. Hi. I'm in my early 20s. I have very high estrogen level and had to go for surgery coz the endometriosis spots spread all around my uterus and my periods caused me to have a huge cyst on my right ovary. So the doctors advised me to take Visanne. During the first few months, my body reacted poorly to Visanne. But as time went by I can't tell you how grateful I am to Visanne. My dysmennorea and endometriosis pain has disappeared. Yes there are a few side effects during the first few months coz your body is getting used to the change. I used to suffer from acne but after Visanne my acne totally stopped. I'm using Visanne for over a year now and will not stop using it until I plan to get pregnant which will be years from now. Hope this helped :)

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  65. hi everyone
    my doc advised me visanne for 21 days as she said i have got 3 cysts on my ovaries. i stated it on 10th march.. on 15th march i had a polypectomy for my polyp in uterus..
    now my question is after how many days of stopping visanne i should expect my periods.. cause i have to get my IUI in april. if i cant get IUI done in april i will have to wait for few more months as we r moving out of the country...
    really concerned about the period thing.
    plz advise...

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    1. Hi. I've been taking Visanne for over a year now daily. Once, I missed taking my pills for 2 days and almost immediately my period started. So don't worry. It should start back in a day or 2 or maybe even 3. But definitely won't take very long. :)

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    2. thank you so much... hope it works for me too the same way..

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  66. Hi, i am 18yo and took visanne for a month because of my very painful period. Now I am more than month off this pill and my period is 12 days late. I am pretty scared. Could this be the cause? Thanks for any reply

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    1. Hi Eva. Don't panic! Irregular menstrual patterns are common among women taking progestin like dienogest (Visanne). Give yourself some time. Your period will be back to normal. :)

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  67. Hi All, I am on Visanne for almost a year now. I have endo in my bowel and to avoid any major surgery i am on visanne. I have mild side effects like bloating and yes i have gained weight but I am pain free.
    From past few months i have noticed that my skin is very itchy and my scalp is very dry that has caused danddruff and some hair loss. But i dont think i will stop taking Visanne. It has helped me a lot to lead a pain free life! Hope this helps.

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  68. Hello everyone, I started taking Visanne since February after my second surgery of endo.
    I'm so glad to find that I'm not the only one experiencing terrible time because of Visanne.
    The first month was good without any side effects. Well, I was really afraid to start Visanne because I knew that it has a lot of side effects. And then after a month, i didn't have my period and since that my period stopped. But after a month, I had a light bleeding and it became a heavy clot. I had that heavy clot for few days and it was so scary and depressing.
    I didn't have any spot or bleeding for few days after a month but then it started again and it's going on and on.
    Except the bleeding, I am suffering from stomach pain like poking and swirling feeling, mood swing(sometimes I feel so sad and depressed that I really don't know what to do), tiredness(feel tired really easily).
    Except that I don't need to deal with period, Visanne is giving me a lot of terrible feeling.
    Hope Visanne works out well and I don't need to do any surgery about endo.
    I am expecting to have a baby after Visanne.
    I hope everyone who's suffering from endo and Visanne find a small peace through this website and get healthy!

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  69. This information will help those suffering from Adenomyosis and Endometriosis, I was also a victim. I am excited to share this testimony, I was 3 years ago diagnosed of Adenomyosis and complicated Endometriosis. My medical condition was heart broken because it was causing my menstrual cramps,bloating before menstrual periods, lower abdominal pressure which result to heavy periods. I was subjected to different medications by my doctor for treatment such as Coenzyme Q10,ibuprofen, Danazol and many more. Despite my visit to several doctors my health wasn't getting better, all they could say was surgery. At the verge of giving up, I went to the internet to search for a treatment at least. But I found a cure instead. In the internet, I read a testimony of a lady who had Adenomyosis and Fibroid. She shared an e-mail address of the Doctor. Luckily everything seemed to be okay after I took the Herbal Medicine. I wish I could say that’s the end of it because I haven't had any symptoms since then.
    Do not expose yourself to more danger, use a herbal remedy that is safe and effective. If interested contact him: ronniemd70@gmail.com to find out more information and treatment.

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  70. My sister's visiting U.S (Austin, TX) and one of her bags got lost in transit- the one with her Visanne medication. She only has 6 pills left and we're finding it difficult to locate here. I'm reluctant to have her try new medication without her doctor, and was wondering if anyone here can point me to a place where i can find Visanne in the U.S while we're trying to retrieve here baggage. Any information will help! email me: rupaljets@gmail.com

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  71. Hi all,
    I've read almost all your comments here, and my story seems somewhat similar.
    I have discovered I had endo in 2004 and been battling with ever since. I had surgery after few days of discovery since the cysts on my ovaries were huge and the pain unbearable. After surgery I was on shots that stopped my period for 6 months but was impossible to continue after 6 months since it was dangerous. After the shots I was put on Yasmin birth control pills and period was regular again, however Yasmin ruined me with the mood swings, inability to move and being nauseas 24/7. It didn't fix anything. In 2017, after several failing attempts to conceive, I had to get a laparoscopy to remove the recurred endos. After another intravenous shot to stop my period, I went for my IVF. It was a success, but endo didn't stop growing. After meeting a new gyno.,we decided on suction (aspiration method) to empty the cysts of the endo every year to avoid some discomfort and side effects. So I went to aspiration surgery every year from 2008 till 2015 till that stopped working again. I had hamoraged for 3 moths straight with no serious pain, but I kept feeling weaker by the day. That's when my Gyno. decided to put me on Marvellon which brought back all Yasmin's side effect with a notch this time of throwing up and fainting since my low pressure persisted and dehydration due to throwing up was a fact to face. I stopped marvellon after 3 days only and went to meet my gyno again. He advised either surgery again (for the 3rd time) or Visanne. Visanne saved me from surgery and I'm on it for almost 2 years now. My cysts are getting smaller now although in millimeters, but all signs of endo are gone. I tried to stop it once and heavy serious bleeding left me in bed for few days. Some mild side effects are inevitable but do we have a choice? I have constiption no matter what I do, my gyno didn't mention I shouldn't have any sugar or diary along with Visanne and I just controlled my salt intake to create some balance;but I now I have fat deposits in places I never imagined(and I'm not sure any diet is working or even exercising) and my breast grew few sizes and feel so sore all the time. I have to stop Visanne on August 2017, and the gyno advised me to either try for another IVF or another laptascopy since there are no proven or recorded trials of Visanne after 15 months and it has been almost 24 months for me.
    Wish me luck ... and I wish you luck with the battle and the constant pain with the hope of finding a serious cure soon and we stop being the guinea pigs that we are.

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  72. I'm so glad I found this post and the comments. My god I thought I was alone cause the dr dismissed all my concerns about Visanne.

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  73. Hi Everyone
    It is so helpful to find spaces like this and now that I am not the only one suffering from this awful disease.
    I would like to tell you about my experience. First of all Im from Honduras so hello.
    I had been suffering from pelvic pain since my first period when I was 15, this pain just got worst and worst every year, went to the gyno since 15 years old and all the different doctors suspected I was faking the pain since nothing ever showed up in the ultrasounds. Move forward 16 years, yes 16, at this point the pain was excruciating I had pain 1 week before my period, the 8 days my period lasted and 1 week after my period, so basically I had pain for at least 18 days straight, the week of my period the pain was so awful that I couldn’t walk for 2 days, no pill would help, ended up taking opioids which would get rid of the pain only for one hour and then they’d come back. Those where the worst days of my life, and even then drs said I had nothing and that I was faking so I dint have to go to work… unbelievable.
    One day in January 2014 at age (31) I had pain in one side of my buddy and they suspected kidney stone so I had an MRI, from there hell broke loose, I was diagnosed with Cancer by 4 different doctors, can you imagine CANCER, cause they saw a huge amount of tumors un my uterus. I found a gynecologic oncologist which said “immediate operation”, 3 days after diagnosis I had a laparotomy, that resulted in the extraction of a softball size tumor, my left ovary and the happy news that it was not cancer but that it was a very severe endometriosis that had my uterus fused with mu intestines the fallopian tubes and ovaries, and endometric adhesions in my anus. So yes it’s not cancer but my endo is really advanced.
    After the surgery, I was put on some injections for 6 months to induce some sort of menopause (the most awful hot flashes ever), and since august 2014 (almost 3 years now) I have been on Visanne. I have had NO pain in all this time, for the first time in my life since I was 15 years old I have a pain free life. Are there side effects… yes awful mood, sometimes hate everyone around me jajajaja, hot flashes but not as bad as with the injections, weight gain (35lbs ) pounds that have been impossible to shed off no matter what I do, just recently pain in my breasts, a little hair loss but nothing extreme, and ZERO, ZERO, ZERO sex drive(no partner so I don’t care that much). In general I’ll take the side effects 10x before returning to my pain. Visanne has changed my life I’m never stopping the pills, and if I have to, it will be only to get a FULL hysterectomy, so no kids for me, :(

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